How to Be There for A Friend with Chronic Pain
Do you have a loved one who deals with chronic pain?
If you don’t experience chronic pain, it can be hard to understand just how much it can impact someone’s life. While for most people, pain is unusual, a sign that something needs to be tended to immediately, for folks who manage chronic pain, it is a constant state.
The baseline, rather than comfortable or content, is typically still some underlying degree of pain, even when on a pain management routine of some sort. Chronic pain impacts the sufferer from the moment they wake up until the time they go to sleep (and often in between as well, as chronic pain commonly impacts sleep!) so it can be hard to know how to help!
If you’re looking for ways to support a loved one with chronic pain, here are 6 ways to be there for them:
Consider obstacles before proposing plans
Even something as simple as going for a walk can be difficult for someone with chronic pain. That doesn’t mean it’s impossible for them, but when you’re planning outings that you want your friend with chronic pain to take part in, try to consider what problems it may bring up for them, and what accommodations can be made so that friend can still come and have a good time. Again, if you’re planning something like a hike or a walk, it could be as simple as making sure to pick a path with benches along it so there are places to rest along the trail without having to sit on the ground (which can be uncomfortable, embarrassing, or even impossible depending on the pain your friend experiences).
Don’t leave them out of the planning
Even if you’ve considered the obstacles, you’re not the one with the chronic pain, so you’re not the expert on whether things have been taken care of! Make sure you let your friend know what you’ve thought of, but also ask them to please let you know if there’s something else they are concerned about so that you can make accommodations for them. For the above example it could be as simple as saying, “Hey, I’d love for you to come hiking with me. I found a trail with lots of benches so we can stop as often as we need to. Is there anything else I didn’t consider?”
Don’t make them ask to use the accommodations:
If you know something is an issue for your friend, try to offer the accommodations without waiting for them to ask for it. It can be vulnerable and even feel embarrassing to ask for accommodations others don’t need–especially if you’re in a large group–so they push through pain or discomfort rather than call attention to the fact that they need help. Using the hiking example, you can offer to take a break before your friend asks for one. It’s as simple as saying, “Hey let’s stop at the bench up there for a water break!” You don’t have to call attention to their discomfort, and you can show them you’re actively thinking about them & their needs.
Understand there aren’t always accommodations that work:
Your friend with chronic pain might not always be able to find a way to make your plans work. Whether it’s because they’re having a bad flare up, making the usual accommodations useless, or because there just isn’t a way for them to mitigate the pain they’d be experiencing if they participated, there just isn’t always a way to make it work. It’s not a personal judgment if they say they can’t come, and while you might feel tempted to over apologize, that might actually make them feel worse–then they have to comfort you because their pain prevents them from participating. Instead, let them know you’ll miss them and that you do something with them soon.
Offer help if you can:
Not everyone has the energy or the time to take on some extra responsibility for their loved ones, but if you’re able to, offering to pick up the slack for your friend every now and then can be a wonderful way to support them. Living with chronic pain can make it difficult to stay on top of things like dishes or laundry or grocery shopping–basic maintenance things. Because often the pain is so severe it is difficult to function or focus on anything else. Severe pain also makes sleep difficult, exacerbating the cycle. If you have some spare time in your week every now and then, check in with your friend, ask if there’s anything you can help them out with. If they’ve been complaining of their pain more and more frequently, let them know you’ve noticed and ask if there’s anything you can do to lighten the load!
Believe what they tell you, not what you see:
Folks who have been living with chronic pain for years may not look like they are in pain from the outside. When there’s no break from the pain, it becomes a new normal that they have had to adjust to–however that doesn’t mean they aren’t in pain. If your friend has chronic headaches, but looks “normal” when they’re in pain, that doesn’t mean they are faking. The way they look “normally” is what they look like when they’re in pain, because pain is normal for them.
Parenting can already feel like driving somewhere new without a map–when you add in managing chronic pain on top of that, it can be hard to find resources that speak to your experience. There are a lot of limitations that come with experiencing chronic pain that just aren’t factored in with typical parenting advice. This can make parenting–where your whole world is about your child, and you already feel a little removed from your “adult” social circles–feel even more isolating.