7 Blogs to Read if You’re Dealing with Chronic Illness
Living with chronic illness impacts your whole life.
From your relationships, to your work life, to your self-image, chronic illness finds a way to influence everything. Many of us prefer to think that chronic illness is something we’ll never have to deal with, so it can seem jarring or even frightening to consider what our lives would be like if we dealt with chronic illness.
Part of the fear that comes from imagining life with chronic illness is that we live in a world that was not designed for disabled or chronically ill people to move through. We understand, on some level, how difficult it is to navigate a world that is at best indifferent to you and at worst hostile to your participation.
When we understand more about the experience of folks living with chronic illness, it's easier to be empathetic and to extend compassion to others and to yourself. Studies show that six out of every ten adults in the United States are living with a chronic illness, so chronic illness is definitely not as rare as we might like to think.
Especially in the wake of a mass disabling event like the Covid-19 pandemic, it’s important to consider what the world is like as a chronically ill person and what we can all do to make things a little easier on folks who do live with a chronic illness.
To help make a difficult experience a little easier, we’ve gathered 7 of our blog posts related to living your best life with a chronic illness:
The majority of people in the United States will experience chronic illness at some point in their lives.
There’s no doubt about it - living with a chronic illness has an impact on your mental health because our mental and physical health is interconnected. Just because you don’t have to worry about chronic illness right now doesn’t mean that will always be the case.
It’s critical to understand the ways that chronic illness can impact mental health because the odds are that you will experience chronic illness at some point in your life, whether for yourself or through someone you love.
Read 5 Ways Chronic Illness can Affect Your Mental Health
Do you have a loved one who deals with chronic pain?
It’s not always easy to know how to show up for someone when they’re going through something serious or life-changing, like dealing with chronic illness or pain. It’s also difficult for folks who don’t live with chronic illness or chronic pain to really understand all the different ways that it impacts everyday life.
Learning ways to be more conscientious about making plans and prioritizing accommodations for your chronically ill friends can make them feel safe and cared for, which is ideally how we want our friends to feel in our presence, right?
Read How to Be There for A Friend with Chronic Pain
When you can have reasonable expectations for yourself & your limits, you can start to develop compassion for those limits.
It can be frustrating as a chronically ill person to feel like your limits change from day to day. Your energy levels change, your symptoms shift, and it can be hard to find a routine that you can sustain for more than a few days. At times it can even feel like you’re working against your own body, which can feel heartbreaking and confusing.
It’s important to learn how to be compassionate with yourself when you’re chronically ill. There are already enough things to deal with when you’re in pain or symptomatic without being hard on yourself on top of it.
Read Developing Self Compassion While Living with Chronic Illness
Are you parenting a child with chronic pain?
Watching your child suffer is devastating as a parent. You might feel helpless when your child is in pain or stuck, like you don’t know where to turn for help. It’s also logistically difficult to parent a child with complicated medical needs, and parents of chronically ill children often feel isolated or burnt out.
Finding ways to support both children with chronic pain and their parents as they navigate this complicated experience can help improve quality of life, even in the face of pain.
Read 3 Tips for Parenting a Child with Chronic Pain
Since chronic illness is longer term than acute illness, it tends to ripple out and affect even more of people’s everyday lives, including their relationships.
Unfortunately, the reality for many chronically ill people is that their relationships change after their diagnosis. There are lots of reasons why this happens, but it often feels extremely personal and painful.
Many people don’t realize how isolating and exhausting chronic illness is, and since it’s a long-term condition, the impacts on relationships can be long-lasting. Practicing speaking up for your needs, setting boundaries, and practicing coping with grief can all help you navigate changing relationships in the aftermath of your chronic illness diagnosis.
Read How to Cope With Losing Relationships as a Result of Your Chronic Illness
One thing that might surprise folks about living with a chronic illness is the amount of grief there is to navigate.
Chronic illness has a way of changing everything about your life, from the way you relax to your job to your relationships. Major changes and upheaval in your life often lead to grief, and learning how to cope with that grief can make it easier to navigate.
The grief that comes up in response to chronic illness can come from your changing relationships, the dream of what could have been if you hadn’t gotten sick, and even from the way the world treats folks with chronic illness. Learning how to move through the world in this new way takes time and lots of self compassion, and you’re not alone for feeling this way.
Read Understanding Grief and Chronic Illness
If you suffer from chronic pain, the idea of body positivity might feel like asking a lot.
It can be hard to feel positively about a body that is letting you down or causing you pain. Learning how to love your body and feel positively about it isn’t the only way you can have a healthy relationship with it, though.
You might need to practice readjusting your expectations and understanding your new limits. Remember that you and your body are worthy of respect and care, no matter what else is going on.